Month: August 2020

The Moncton Hospital Physiotherapy Department continues to deny me outpatient rehab as I try and recover from Guillain Barre Syndrome. I’ve been home since June 25, 2020. This has been pretty frustrating. This was one of my fears of me going home as I wanted to be able to go to physiotherapy and continue my recovery from Guillain Barre Syndrome. This has not been the case so far.

I knew they shut outpatient services due to the Covid-19 pandemic long time ago but that’s been opened back up for a while now. I officially came back home on June 12th to the Moncton Hospital and it was back in operation then.

This past Monday my physiotherapist at Stan Cassidy Rehabilitation Center messaged me after coming back from vacation. She was in in complete shock and blown away that they continue to deny outpatient physiotherapy. They continue to say I don’t qualify???? The people that I know that’s left Stan Cassidy all got outpatient physio so I have no idea why I continue to have issues with everything. My physiotherapist was very disappointed that this is happening.

I haven’t had physiotherapy for a long time now minus leg exercises in bed. Frustrating indeed considering I want to keep moving forward but the last few months I haven’t seen progress. People need physiotherapy to have a chance at continuing recovery especially from Guillain Barre Syndrome.

Looking Into Rehab at Home Now

My mind set is I’m going to do it on my own now. If I’m going to get better it’s on me. I need to do rehab from home. In order for me to do that I need a treadmill and a ceiling lift and that cost money unfortunately. I’m hoping I’ll be able to eventually get that but being on CPP Disability income is lower. I’m going to see what I can do as I need to get this going since the physiotherapy at the Moncton Hospital is letting me down. I continue to get denied for everything NB Housing Program was another one.

It will also be nice to have that exercise equipment and ceiling lift at home if I can. With this Covid-19 pandemic going on outpatient services will eventually get shut down again anyway this coming fall. Having equipment at home will ensure continued rehab and hopefully further recovery from GBS.

After speaking to my physiotherapist from Fredericton though she’s going to try and get me into the Georges L. Dumont Hospital instead. Going back to where it all started maybe. Guillain Barre Syndrome started on August 1, 2019 for me. We’ll see what happens but hopefully I’ll get some until the rest gets figured out. I was talking to my old friend that grew up on the same road as me that has GBS too and he’s getting physio there. I’ll wait and see but referral for physiotherapy has been made.

One more hiccup, but I’m so used to it now. Nothing surprises me anymore at all. Frustrating but doesn’t surprise me. No matter all the challenges I’ve faced and there’s been a lot, I continue going forward. When I look back at this one day, I never gave up despite everything thrown my way.

A year ago today on August 11, 2019 I woke up from an induced coma after becoming ill with Guillain Barre Syndrome. It’s crazy thinking about where I was a year ago and the shape that I was in. I almost didn’t make it but I’m still here today fighting to recover from GBS. Guillain Barre Syndrome started for me on August 1, 2019, last year. The day it changed my life forever.

I sit back often thinking about the past, thinking about the struggles and my condition I was in. There are things that will forever be engraved in my mind like the day GBS started, the day I was placed in a induced coma, the day I woke up from my coma, the first time being able to speak and my very first meal. My recovery from Guillain Barre Syndrome has been a long one but certain days each year will hold a special meaning to me.

I’m thankful I woke up. I’m thankful for my recovery so far and I’ll also be forever thankful if my recovery continues from GBS. Now it’s just time but I’m grateful on this day a year ago I opened my eyes. Guillain Barre Syndrome almost took me out for good but I won that fight. Now my fight to complete recovery continues. I’m hoping one day that will come no matter how long it takes. Time will tell. Time is just a number, it’s the end results that matter. 🙂

A year ago today on August 2, 2019 at around 6:15pm I was placed in a coma for the next 10 days as a result of Guillain Barre Syndrome. My breathing became so compromised that they had to act quick. I remember this day like it was just yesterday. To only have minutes to say what you wanted to say to love ones not knowing exactly what’s going to happen. For the next 10 days I was in an induced coma.

Now it’s a year later already. Crazy to think where I was a year ago at this exact moment. Laying in a bed, in a coma and not knowing what life was going to bring me. I’ve not recovered fully, not sure if I ever will but I’ll work towards getting my life back. I hope that day will soon come.

A Year Ago Today I Was Placed In An Induced Coma, August 2, 2019
http://www.guillainbarresyndrome.ca/guillain-barre-syndrome-test-please-gbs-treatment-needed/