Well I’m back at the Moncton Hospital, day 317 of my recovery from Guillain Barre Syndrome. My new home for hopefully just a little while. Unfortunately no more private room which I had for a long time. Now I’m in a room with two other people on the impatient rehab floor. I liked the privacy I had for a while, hopefully I won’t be here long at all. Come Monday I’m going to be on people to ensure I go home right away. If I could I would discharge myself.
I may be frustrated with management that didn’t give me the courtesy and respect as others and listening to my requests and concerns. For 8 months and 12 days of my life i was in Fredericton at Stan Cassidy Rehabilitation Centre, what’s 8 months and 19 days really. I do however like to thank the team that helped me get to where I am today. There was some great nurses that I’ll miss, had some good laughs and they also made my transition there easy. I didn’t get chance to see everyone I wanted to say something to before I left but I did some.
In all the years nurses here in Moncton, old and new I was told when I arrived they never seen this patients coming from Stan Cassidy back here as usually they go home. They never seen it. I told them I was hoping they’d give me a week to get things set up at home. I was there 8 months and 12 days. Exact comment was what’s an extra week. Exactly, I know. They said more expenses then if I would have just stayed there, Ambulance ride, admission etc..
I’d like to also thank my physiotherapy team, Christa, Sam and Isabelle for helping me get where I am today. I remember first getting there going on the SciFit bike thinking to myself how the heck am I going to get better. Hardest time on that bike the first time and that was on level 1 that I couldn’t really do. Everything they did with me helped get me here today. My strength increased and at the end maxed out bike on level 20 now.
I remember the first video of me walking in parallel bars and my mind telling me again how the heck am I ever going to get better. However I stuck with it, worked hard and things started getting better. The program they had was good, they mixed things up and my progress started coming. It was no sprint but they got me better. I thank them all, Bravo guys!!!!
My occupational therapist Renee helped with my hands and arms and getting some of my independence back. My hands are still not recovered much but she got me doing some things. In time, we hope the nerves heal and more come back. It’s just time now. If nerves not healed enough, can’t do much really.
We had some good laughs, some of the things she had me try, key word try and do is frustrating as hell. I joked saying Renees treasure box of torture. Lol. She was my case coordinator, lots of talk, lots of planning about discharge. She knows me very well, haha, she knows how I think and she’ll forever be my conscience over my shoulder, lol I was there too long. She’s very good at her job and she also tried lots of new things. I’m glad I had this exact team looking over me. I appreciate everything they’ve done.
With the way things went today, I never got that video of me walking out the front doors on my own two feet. Management took that special moment away from me that I wanted since the first day I got there. I had my goals and was determined to accomplish what I came for. It looks like I’ll have to get a video of me walking out the front doors here at Moncton Hospital. It won’t be the same but I’ll have to take it.
To the team that helped me recover from Guillain Barre Syndrome. Thank you! Many involved, can’t mention all but everyone that played a part you have my sincere gratitude. Hopefully soon I’ll be home. And yes Renee I have a way to get home, lol I hear you over my shoulder now Hahaha I’ll take your recommendation under advisement. Little laugh we had today!
