Well tomorrow my Gabapentin nerve pain medication, drugs for treatment of nerve pain and pain management for Guillain Barre Syndrome will be stopped. I have been on this for a long time. A nurse the other night asked me if I ever have any nerve pain and I don’t. This is unordinary for people with Guillain Barre not to have any pain. For me I had all my pain while I was in Moncton at the Dr. Georges L. Dumont Hospital. I had a lot of pain then. Severe nerve pain from GBS. I use to take Dilaudid every 4 hrs. for pain along with Gabapentin. It was bad before, so bad I was almost in tears. You can never get comfortable, that’s for sure.
Ever since coming to The Stan Cassidy Rehabilitation Centre I’ve tried to get off all the medications really. I was on a lot. They had me on Ativan for anxiety, sleeping pills, pain management drugs for nerve pain Gabapentin (Neurontin), Tylenol, a stomach pill, multivitamins etc… There was basically a cocktail of pills I took all at once. You have to wonder taking so many at the same time does to you.
The doctor came in to speak with me asking if I had any pain at all. I told him no I haven’t I had nerve pain for a while. I’ve already decreased my dosage on my own for the Gabapentin nerve pain medication as why take it if I don’t have any nerve pain. I’ve asked them a few times now to decrease medications or to eliminate them all together. Sometimes they need to gradually reduce the dosage to come off certain drugs like Gabapentin since I was on it for so long. Gabapentin is also the nerve pain treatment drug of choice for Guillain Barre Syndrome.
The only pain I’m having now is some discomfort and pain in my left knee. I’m taking Celebrex for it as needed but I haven’t taking it for a little while now. I would really like to get off all these medications and only take the ones when I need it.
I’m happy that I don’t have nerve pain anymore. I’ve heard of many people continuing to have severe nerve pain with Guillain Barre Syndrome. I’m therefore quite fortunate that’s not the case with me anymore. Gabapentin is one less drug and pain management medications I’ll be taking going forward.