Well today I was informed that I have Guillain Barre Syndrome AMSAN, a rare GBS variant, the most severe form. AMSAN, acute motor and sensory axonal neuropathy is a rare axonal variant of Guillain Barre Syndrome. I suspected this all along but the doctors never told me there was different variants of GBS until I did more research and discovered this on my own. When the doctor did his morning rounds I asked him what type or variant of GBS do I have. The doctor then confirmed with me that I have the most severe type of GBS.
Guillain Barre Syndrome AMSAN GBS Variant
AMSAN is considered the most severe form of GBS as the severe symptoms happen very quickly. This form of Guillain Barre causes severe weakness in all four limbs, basically completely paralyzing you in as little as 7 days. For me it basically happened in around 24 hrs. My breathing became so compromised that they had to put me in an induced coma along with mechanical ventilator. The risk of mortality with this form is high. I’m actually quite lucky to be alive thanks to the care provided by the doctors, nurses and respiratory therapists at the Dr. Georges L. Dumont Hospital in Moncton.
The Cause of Guillain Barre
There is little known research as to the cause of Guillain Barre but is suspected to occur following a gastrointestinal virus or infection. As for me I had diarrhea about 7 days before I became ill with GBS. It lasted for about 4 days, then 3 days later after it cleared up I was hit with Guillain Barre. Guillain Barre Syndrome is however known to brought on by the flu shot. Know the risk before getting one.
With me knowing that I do indeed have the most severe variant of GBS doesn’t change anything. I am going to continue to work hard and try to get better. On day 40 I was already told I wasn’t going to make a complete recovery by one neurologist. Others have seen me afterwords and based on my progress they don’t see a reason why I shouldn’t. When someone tells me I’m not going to achieve something, it makes me work that much harder. I’ve been making great progress I’m going to continue to do so. I know nothing is guaranteed in life however I need to have faith that I will recover from the worst variant of Guillain Barre Syndrome known as AMSAN. Only time will tell, till then it’s hard work and determination that will drive me forward.
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With Guillain Barre Syndrome – GBS