Since I’ve gotten home this is not what I expected as I have not received no Physiotherapy at the Moncton Hospital and I’ve been home a month. When I left Stan Cassidy Rehabilitation Center in Fredericton I expected Physiotherapy to continue. That’s what was told to me, a few days a week Physiotherapy outpatient services in Moncton. I never wanted to come back home to nothing and that’s what basically happened. I’ve worked so hard in my recovery from Guillain Barre Syndrome, I don’t want to go backwards.
I knew because of the coronavirus pandemic outpatient services were suspended in hospitals and rehabilitation centres. Before I came back home they lifted that again. At the Moncton Hospital since they had the patient lift in Physiotherapy I was told my walking would continue. This never happened. I haven’t done any Physiotherapy really since I’ve been back. No walking, no biking etc… and that’s something I was doing everyday in Fredericton. I never wanted to go back in my recovery, that’s my fear of being home. To beat Guillain Barre Syndrome I need my Physiotherapy….
Physiotherapy Is A Requirement To Beat GBS
A few weeks ago I talked to someone about the leg exercise program I was given when I left the Moncton Hospital. I told the guy, I don’t need in home Physiotherapy, I need Physiotherapy at the hospital to continue doing what I was doing in Fredericton that got me to where I’m at today. I need walking, biking, intense physio, not leg exercises in bed. He agreed, he said they are very limited to what physio they can do in home. The equipment I need is at the Physiotherapy at the hospital. He said he was going to make a few calls, I never heard back.
After seeing nothing going on the way my mentality is, I’m going to do it myself now. If I’m going to get better it’s on me as I’m not getting any Physiotherapy now that I’m in Moncton. I’m making plans now to do biking and walking at home on my own. I didn’t work this hard to get where I am for nothing. I’m going to keep working to keep going forward on my own. It’s a bit disappointing really all the extra challenges, denials etc.. for everything. Regardless I’m going to keep on going.
When I was at the Moncton Hospital someone told me I have to learn how to crawl before you walk. Yes, that may be true but I can walk when I’m up, I just can’t stand up on my own yet. Yes, that’s my challenge but Stan Cassidy got me to where I am today by doing what they did. It was working. To be honest to stop doing everything I was doing to simply do leg exercises in bed is ridiculous to be honest. My sit to stand was getting better, need more work on strength etc… and walking and biking everyday was working.
Physiotherapy, Continue With What Works
I don’t agree with just leg exercises in bed. The program I had was working and you don’t fix what’s not broken. With Guillain Barre Syndrome recovery time, muscle building etc.. takes different time for everyone. In Fredericton they get the worst of the worst cases for a reason, they are good at what they do.
After getting no where’s in the last month I contacted my physiotherapist in Fredericton. I had a conversation and she made a referral for me to be seen by Physiotherapy outpatient services here in Moncton. My doctor at Stan Cassidy said I need ongoing Physiotherapy. A referral was made so we’ll see what happens. I’m hoping that I can at least get some physio right away until I get things set up at home.
With this coronavirus pandemic I don’t want to take unnecessary risks or exposure by going to the hospital if I can avoid it. I’ll do physio at the hospital until I can do it on my own from home. I just need the equipment to do it. Something I’m working on but everything cost money. Hopefully I’ll be able to get some Physiotherapy here soon. I want my life back and in order to get better or have a chance at getting better I need Physiotherapy, the more the better. Hoping things work out and I get a call here soon.