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My GBS Story

Guillain Barre Syndrome Day 8 – Bronchoscopy Required For Mucus Removal Again

It’s now day 8 since this all started with Guillain Barre Syndrome. My nurse on duty today was Renée, whose very caring and helpful. My parents arrived around noon. They had to do another Bronchoscopy for mucus removal early this morning with the camera. My readings were stable with a temp of 37.2. The nurses had to change my bed today, the other one was a trial bed to for the new ICU. My parents just couldn’t imagine how they were going to move me from one bed to another. They did it though.

My lungs had to be cleaned manually this time at noon. The doctors were going to do EMG nerve conduction test today, but I wasn’t awake enough. One of the nurses on duty Sophie requested Louise, a spiritual care practitioner to follow my recovery from Guillain Barre and to also help my family through this difficult time.

My lungs needed to be cleaned manually  again at 2:20pm, it was only 2.5 hrs since last time. My recovery from Pneumonia seems to be getting better. My parents said I was very agitated around 4 pm, trying so hard to talk when he opens his eyes. It was just hard for everyone to watch this as I try and recover from GBS.

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