It’s been 10 days now that Guillain Barre Syndrome put me in an induced coma. On August 3rd 2019 my breathing became so compromised that the doctors had to intervene as a result of my symptoms and deterioration health wise from GBS. Now 10 days later I’m awake only to learn the difficult road ahead as I face my recovery from Guillain Barre Syndrome.
It’s been now 10 days since since being placed in a coma I am now awake. This was by far the hardest day of my life. I have just learned that I am now completely paralyzed from head to toe. I cannot move a single part of my body, I cannot speak, I cannot communicate with the nurses, the doctors, my family, I can’t do anything. Is this really how my life it’s going to be? If so I don’t really want to go on.
Guillain Barre Syndrome Has Completely Paralyzed Me Head To Toe
Wow! I sit here thinking is this for real? Why? Why and how did this happen? I cannot believe my life has literally changed in an instant. Guillain Barre Syndrome has changed my life forever. The feelings, emotions, the anger, the frustration and the loneliness is what I’m trying to cope with now. It didn’t seem real, it felt like a horrible dream but the truth of the matter it was very much real, I’m now living it.
Guillain Barre Syndrome Nerve Pain
On top of just learning that I was completely paralyzed I’ve now just learned about the nerve pain associated with Guillain Barre Syndrome. It’s a type of pain like you’ve never had before. My body felt like it was on fire. The nurses and my parents had to place ice cold face cloths all over my body. The face cloths almost dried instantly after being placed on my body. My body temperature was normal but the feeling that my body was on fire was all caused by nerve pain. They had me on high dose nerve pain medication which included Gabapentin and Dilaudid injections every 4 hours for the severe pain I was experiencing.
While going through this I had to deal with the lack of communication and struggles associated with it. I couldn’t speak, I couldn’t move, I couldn’t ring the buzzer for help. I felt completely helpless. I tried speaking with the nurses and my family but not everyone was great at lip reading. The frustration with the inability to communicate with others was taking a toll on me. I felt so lost and scared at the same time as I couldn’t get a hold of anyone if I needed anything. All I did was lay there staring at the ceiling feeling so lost and helpless. Time literally stood still as I can’t turn the TV on, change channels, can’t pick up my cell phone, can’t go on my iPad, can’t go on Facebook, I literally couldn’t do anything. If this is what my life is going to be I didn’t want to be living.
Why did this happen to me? Will I ever recover from Guillain Barre Syndrome? Will I ever get out of the hospital and return home? These are the questions that are running through my mind today but no one can answer these. Today was a rough day and only time will tell if my life will ever return to normal from this horrible debilitating illness and disorder called Guillain Barre Syndrome. Now I wait for the unknown.