Today I started my Physiotherapy Rehabilitation, first session is this afternoon. My nurse for today was Sue, one of my favourites. Last night I was able to get 3 hrs. sleep which was good. They had to use camera again today to clear lungs which were better this morning. They’ve had to do many Bronchoscopy procedures on me now since becoming ill with Guillain Barre Syndrome and pneumonia.
My Physiotherapy Rehabilitation session at 1pm went well. I smiled and told the physiotherapist and the spiritual worker that I’m going to work my ass off to get better.
Today I was having hot and cold feelings all day. One moment I’m extremely hot, the next moment I’m cold. My parents put cream on my hands and feet and they worked my hands, toes and feet to prevent stiffness from being unable to move. Trying to keep everything loose. I was kind of tired from physiotherapy as well.
All day I was burping a lot so they checked for leaks and had to use camera again at 4 pm. There was less mucus, lungs looking better. I was so hot at times my parents and nurses continued to put ice cold facecloths all over my body. My parents left at 8 pm and I watched TV the rest of the night till bed. The days are so long. Time literally slows down.. I hope I get better soon.
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With Guillain Barre Syndrome – GBS