Guillain Barre Syndrome day 11, tracheostomy surgical procedure day. My nurse for the day was Joanie, she’s an amazing nurse one of my favourites. The tracheostomy was done at 10:30am this morning, no bleeding, everything went well! I was stable. The doctors stopped sedation at 11:30 am and I was responsive to doctor who checked my lungs for fluid (ultrasound). There was no fluid around my lungs and pain meds were given.
My parents said I looked so much better with tubes out of my mouth. After looking at the pictures, really…. I looked pretty awful and definitely need a shave, wow! I lung X-ray done and another Bronchoscopy with camera used again to clean mucus in lungs before the trach. Rheal, one of the orderlies, kept teasing me and eventually did get a smile from me.
I asked Joanie today if I was going to space. She told me I was staying right here lol Wow! I guess the drugs were still in me.
Nurse Audrey called my parents at 8:15 pm just after they got home and asked them to come back. They stayed till 11:40 pm The nurses ended up sedating me because I was scared to go to sleep and I asked my parents to be power of attorney for me tonight. I still didn’t end up sleeping tonight even with 2 ativan and sedation, I stayed awake till 5am. Not being able to communicate, call for help, ring the buzzer and completely paralyzed is scary. A truly horrible feeling as a result of Guillain Barre Syndrome.