Today was a rough day, my pneumonia came back and I had a fever of 38.5 degrees Celsius. I just want to go home… I want the tubes out and I want out of this hospital. Sue was my nurse for the day. My antibiotics were changed and sedation meds were turned off. My parents and nurses said I was very irritated today. They gave me Ativan to try and relax me.
Caleb visited today so my parents brought him timbits for being a brave little boy. I don’t remember any of this as I was still highly medicated. Today extra water was also added to IV to help with my dry mouth. I was so thirsty and so hungry too! Pizza and a pop is what I also kept asking for.
I had a lot of leg pain today. My parents said that I thought I had my shoes on as my legs felt so heavy. My parents left for supper and came back at 7pm. While they were there I was very angry and they had to leave at 8:30pm. I guess I kept on saying I want out of here, put me in my wheelchair and I was going home. Nurses told them they were going to give me something to help me sleep and also calm me down. Audrey was my night nurse.
This was not me! I was highly sedated, in pain, frustrated, tons of emotions running through my body. It was tough for me and therefore tough for my family seeing me go through this. I don’t even remember any of this which also includes seeing my son.
These are notes my parents took in their journal to help them cope with my recovery. The spiritual worker, Louise, told them it will help. Consequently this is tough on everyone seeing me sick with Guillain Barre Syndrome. My family continues to hope I’ll get better from GBS as well as from the pneumonia, fever.