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My GBS Story

Pneumonia Recovery Improving, Breathing Getting Better

Dr. Eric Brideau, Pulmonologist, a lung specialist in Moncton came in today and said my pneumonia recovery is improving and my breathing is getting better. I still have a long recovery ahead though. By Friday they are hoping to try 10 minutes off the ventilator. They keep making me work harder with my breathing and I’m fine with it. I’d love to eventually get all these things unhooked off of me. They checked my blood pressure today a few times 90 over 76 and 103 over 88. Little low which might explain why so tired during physio. It was also 4 days now without bronchoscopy with camera for cleaning of my lungs which is so good. Great signs for pneumonia recovery.

Ceiling Lift Transfer To Wheelchair - Patient Jamie Boyle Guillain Barre Syndrome GBS
Ceiling Lift Transfer To Wheelchair – Patient Jamie Boyle Guillain Barre Syndrome GBS ICU Dr. Georges L. Dumont Hospital Moncton

Today I also changed rooms in the ICU at the Dr. Georges L. Dumont Hospital to another room with a ceiling power lift. My 1st time in a wheelchair today and I slept in it for 1.5 hrs. as I was tired. My parents observed during Physiotherapy so they will be helping me with my recovery from Guillain Barre Syndrome.

Guillain Barre Syndrome Nerve Pain - Jamie Boyle GBS
Guillain Barre Syndrome Nerve Pain – Jamie Boyle GBS

While Dr. Eric Brideau was in and he asked my parents about their sleep and told them they need to take care of themselves because he knows they are there all the time. They don’t want them in a bed next to me. My parents thought I was being very demanding today and I told them to GO !! Sometimes they don’t get it, for everything I’m going through and what I’m feeling. I took more pain medication for Guillain Barre Syndrome nerve pain in the morning and one at 4:45pm as I was in so much pain. My stomach was very distended, bloated, and hard as a rock. I wasn’t feeling the greatest at the end of the day. So one more thing to deal with now.