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My GBS Story

SteadyMate Walker Coming Soon! Walking Between Parallel Bars Improving

In Physiotherapy I’m continuing to make progress walking between the parallel bars, the SteadyMate Walker coming soon hopefully. The physiotherapists are thinking within the next 4 weeks. That sounds so good! Doesn’t seem real actually. Could I finally be getting one step closer to walking and to soon go back home again. That would be amazing!

When I was walking between parallel bars, they were impressed today. It’s all coming together. They’ve seen past patients here at Stan Cassidy Rehabilitation Centre and they know when people are close. They’ve helped people walk again from having a severe case of Guillain Barre Syndrome just like me. The last guy that was here with Guillain Barre was here for 193 days, roughly 6 1/2 months. I’ve been here as of today 133 days here at the Stan Cassidy Centre. Using this man as a baseline would explain a little bit why my discharge date has been set for April 10, 2020. The would be the exact days this man was here for. That would give me 1 month walking using the SteadyMate Walker and an extra month walking around the unit getting more practice and feeling more comfortable and working on endurance.

SteadyMate Walker

In Physiotherapy they always joke with me as I don’t show much enthusiasm or emotion when I do things. The truth is I’m hard on myself, I’m working towards the end goal and don’t want to feel let down till I accomplish what I’m here for. When I’m walking, walking out of here, it will be the best day of my life. At that moment I’ll be like, “ I did it!” I’ll celebrate then but till then I’m focused and determined to get where I need to be.

I’m happy that I see the progress and feel close but I’m not celebrating yet. I still have a long road ahead with plenty of rehab even when I get out of here. Still lots of work still ahead. I just wish my hands, fingers and wrists would come back quicker. A person doesn’t realize how much you need something till there gone.

My Guillain Barre Recovery is coming along pretty good. Hopefully soon as mentioned I’ll be in the SteadyMate Walker. As the physiotherapists would say is that I graduated from parallel bars to the SteadyMate Walker. One day at a time but hopefully I’m in my home stretch and 60 days I could be going home maybe depending on how my progress continues. In my mind I think 90 more days is needed, so May, but we’ll see how things go. After being in the hospital for so long, since August 1st, 2019, the thought of being home in 60 days feels some good. That day of me potentially going home doesn’t seem so far away now.