Day: February 25, 2020

My issues with the Canada Pension Plan Disability Benefits, CPP Disability application continues with Service Canada. I’ve lost complete faith in our broken system. There is yet another delay in processing my application for benefits. A letter was sent to me in the mail at home. I’m shocked, come on Service Canada, do you even read your own forms??? The big X is my signature, I was paralyzed unable to write, unable to move, unable to speak. I had to do the X with a black marker in my mouth…The social worker was my witness and it’s clearly signed as it states. I’m frustrated now, more so then before. My social worker today said she cannot believe the hassle I’ve had with this.

Canada Pension Plan Benefits – Our Government Is Letting Me Down

I haven’t worked since end of July, 2019 because of Guillain Barre Syndrome. As you all know I have no money coming in and I explained this in previous posts with issues I’ve had with our Government and The Financial Stress That Comes With Guillain Barre Syndrome. A 170 day waiting period for my application for Canada Pension Plan Disability Benefits and them closing my file and them telling me on the phone to resend everything again and that I’ll have an additional 170 day waiting period is just plain wrong. CPP Disability also would not simply reopen. I am beyond disappointed with Service Canada.

Social Assistance Denied

As some of you already know I unfortunately had to apply for social assistance. They tell me I have a 7 week waiting period because EI gave me a lump sum payment for back time from November 2019 of 7 weeks on January 10th, 2020. Keyword backtime, money owed. Due to their long processing time to update my file for EI with my doctors note on my condition, this also penalizes me with a 7 week waiting period with social assistance.

Even after my 7 weeks of waiting period I only qualify for $135 a month because I’m living at the Stan Cassidy Rehabilitation Centre in Fredericton NB. Needless to say I’m now hurting and the stress is on my shoulders as I still try to recover.

I’m now asking for your help. I’m less then 30 days of being tapped out now. With no help from the government anytime soon. Talks are happening here now on my discharge and therefore the planning for me to go home. Furthermore equipment is needed, renovations needed for bathroom accessibility, and it’s adding more stress as the government let me down. These planning talks are a little hard as they need to plan for the worse and April 10th is coming fast.

If you have the ability to help, it would be greatly appreciated by supporting my Help Jamie Boyle Beat Guillain Barre Syndrome GoFundMe page. No donation is too small. Every little bit helps.

I also have the 50/50 board going on as well on my Jamie Boyle Fight With Guillain Barre Syndrome GBS Facebook page. You can also show your support by buying a square for $10 for a chance to win $500. Both of these will be used to help with bills, equipment and renovations for me to come home. If your unable to donate I ask you kindly to please share both on your Facebook. Sharing is caring too.

Sorry for the long post, lot of things for me to think about today. It was also kind of a tough day.
Thank you.

Well tomorrow my Gabapentin nerve pain medication, drugs for treatment of nerve pain and pain management for Guillain Barre Syndrome will be stopped. I have been on this for a long time. A nurse the other night asked me if I ever have any nerve pain and I don’t. This is unordinary for people with Guillain Barre not to have any pain. For me I had all my pain while I was in Moncton at the Dr. Georges L. Dumont Hospital. I had a lot of pain then. Severe nerve pain from GBS. I use to take Dilaudid every 4 hrs. for pain along with Gabapentin. It was bad before, so bad I was almost in tears. You can never get comfortable, that’s for sure.

Ever since coming to The Stan Cassidy Rehabilitation Centre I’ve tried to get off all the medications really. I was on a lot. They had me on Ativan for anxiety, sleeping pills, pain management drugs for nerve pain Gabapentin (Neurontin), Tylenol, a stomach pill, multivitamins etc… There was basically a cocktail of pills I took all at once. You have to wonder taking so many at the same time does to you.

The doctor came in to speak with me asking if I had any pain at all. I told him no I haven’t I had nerve pain for a while. I’ve already decreased my dosage on my own for the Gabapentin nerve pain medication as why take it if I don’t have any nerve pain. I’ve asked them a few times now to decrease medications or to eliminate them all together. Sometimes they need to gradually reduce the dosage to come off certain drugs like Gabapentin since I was on it for so long. Gabapentin is also the nerve pain treatment drug of choice for Guillain Barre Syndrome.

The only pain I’m having now is some discomfort and pain in my left knee. I’m taking Celebrex for it as needed but I haven’t taking it for a little while now. I would really like to get off all these medications and only take the ones when I need it.

I’m happy that I don’t have nerve pain anymore. I’ve heard of many people continuing to have severe nerve pain with Guillain Barre Syndrome. I’m therefore quite fortunate that’s not the case with me anymore. Gabapentin is one less drug and pain management medications I’ll be taking going forward.